Accessibility
Persons with disabilities have the right to access information and communication systems on an equal basis with others, including digital health platforms.
Launching
Every person has the right to understand, access, and control their health data.
The Health Equity programme advances patient rights advocacy, digital health literacy, accessibility tools, and original research at the intersection of disability rights and data protection.
Bylaws ref: Art. II §3(b)
The Rights Framework
The Convention on the Rights of Persons with Disabilities (CRPD) is the foundation of this programme. These articles establish the rights that health data systems must respect.
Freedom of Expression
Information must be provided in accessible formats and technologies appropriate to the individual, without additional cost.
Health
Persons with disabilities have the right to the highest attainable standard of health without discrimination, including the same range and quality of services.
Habilitation and Rehabilitation
States shall organise and strengthen comprehensive services and programmes so that persons with disabilities attain maximum independence and full participation.
Active Sub-Programmes
Three operational sub-programmes, each addressing a different dimension of health equity. Built by patients, for patients.
PatientAI
OperationalAn AI-powered patient advocacy and research platform built entirely by a single patient using AI as external working memory. Built over five months with zero prior programming experience — a working proof that cognitive accessibility barriers can be eliminated.
- Scripts
- 350+
- Lines of code
- 200,000+
- MCP servers
- 22
- Documents analysed
- 2,637+
Oura Digital Twin
LiveA live patient health monitoring dashboard integrating wearable data with clinical context. Patient-controlled data producing insights that match or exceed institutional monitoring capabilities.
- Verified claims
- 389/389
- Verification rate
- 100%
- Updates
- Daily
CRPD+GDPR Methodology
ResearchA potentially unprecedented legal-operational methodology combining the Convention on the Rights of Persons with Disabilities with the General Data Protection Regulation for health data contexts. Systematic literature review has identified no known published framework combining both instruments in this manner.
GDPR provides the legal mechanism to access data. CRPD provides the rights framework that makes data access a matter of equality. Together they form a replicable patient advocacy methodology for contexts where patients face systemic information asymmetries.
- Institutions engaged
- 12+
- Legal instruments
- CRPD + GDPR
Open by Default
All tools are open source. All resources are free.
The Health Equity programme serves patients, caregivers, and researchers who lack institutional backing. The tools produced here are built to be replicated, adapted, and used without permission or payment. If a tool cannot be operated by a patient using AI as cognitive scaffolding, it has not met the standard.
Learn More About Our Work
The Health Equity programme is one of five programmes operated by The Educational Equality Institute. Each programme helps people understand and exercise existing rights through education, tools, and research.